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23-05-2018 10:25 PM
23-05-2018 10:25 PM
VCFS 22q11 Syndrome
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28-05-2018 01:33 PM
28-05-2018 01:33 PM
Re: VCFS 22q11 Syndrome
Hello @Quince,
I'm Margot, nice to meet you.
It can be challenging to access connection and support around VCFS with little info out there. I wonder whether your son's treatment team might be able to direct you to some information or support services in your area.
I can see you've joined the discussion happening over here which is great. While you're waiting for a few member's to respond you might like to introduce yourself to the community here
Although there aren't a whole lot of threads so far on VCFS, we have a fair few member's who have the expreince of caring for a child living with schizophrenia. You can check them out by typing key words into the search bar at the top of the page. Here's one to get you started. Oh and one of our member's posted here about tips for supporting somebody living with schizophrenia here
Hope that's a little useful for now. Great to have you in the forums 🙂