Supporting my wife who lives with Borderline Personality Disorder while maintaining self care.

[Determined]

S1 is now approved by NDIS @Smc thanks to input from the school. If it was left to me it would have been in the too hard basket so most grateful for support. 

I am expecting a call by the end of the week for another interview to discuss supports available and funded for S1.

For me it is more about long term independence post school. But we need to be linked in now to have any chance of support post school. (At least that's what everyone keeps telling me).   The biggest barrier for me is I hate feeling like I have my hand out all the time. Hard wired to be a provider and self sufficient. 

[Determined]

Mum in law had the ambulance out again today while darling and I were out 🙁

She  had a fall and could not get up

... rather than bother us she called an ambulance. She is still at home but I am getting more worried about for how long.

S2 came to me tonight and talked about how worried and scared he is. I really dont know what darling is thinking. Mixed emotions of acceptance and denial I think but I am worried about how she is going to cope as things progress. 

One of darlings brothers is coming for Christmas which I am happy about. It has been weighing on me if I should call her brothers or not and tell them they need to visit sooner rather than later but it is not my place and I dont want to upset mum. She has been talking to them both but I have no idea how much they have been told. 😣 what to do 😖😟  I know I would want to be told if I was so far away. 

[Determined]

It sucks being the one worried about things others dont seem to think of. Feeling responsible for looking out for others all the time. 

[Smc]

@Determined, maybe you need to talk with your MIL again about letting people know. The hard simple truth is that this is likely to be the last time they can have Christmas with her. Sorry to be blunt. 😞

[Determined]

I agree @Smc.

My mum saw mil this ave and she thinks the same. My mum nursed dad till the end so she has seen the progression before. I think it may have surfaced some negative memories for her also. 

[Janiee]

So glad you got to get out and enjoying yourself @Determined x

[Shaz51]

hugs @Determined, and sending hugs for you mum too as it will bring back memories

my mum is back home and very frail and 6 stones , everyone is soo happy she is home but I can see she is still unwell , and since I do everything , everyones thinks she is doing fine

[Determined]

I imagine yr mum would look frail at 6stone @Shaz51. MiL is about that also 😔

She has lost her voice today. Can manage a whisper at best. Just as well we know some basic sign language, we may need it if she loses her voice altogether. I threw out my sign dictionary when we moved too. That may have been useful. 

[Determined]

Thinking of you in all this too @Shaz51 and @Former-Member (how is your mum going @Former-Member) 

Tough watching a parent loose their independence. Especially when they have always been the helper. 

[Shaz51]

yes @Former-Member, how is your mum going with the added help

hugs @Determined